I've recently been prescribed Cyclophosphamide (Cytoxan) pills to address my hearing loss, following what seemed to be an ineffective Rituximab infusion (two infusions, two weeks apart) in March/April 2021.

My doctors believe that another round of Rituximab would take too long to have an impact on my hearing, as it typically takes 6-8 weeks to take effect. Given my recent sharp hearing loss in my left ear, they have opted for Cyclophosphamide instead.

If anyone has experience with Cytoxan, I would greatly appreciate hearing about your journey with this medication. I'm aware of the possible side effect of bladder cancer, which does concern me.

I am particularly interested in learning about your treatment plan. Did you receive the medication via infusion or as a pill? If it was in pill form, what dosage were you prescribed and for how long? Additionally, how did your doctors determine when it was appropriate to stop using Cytoxan? Were you also taking prednisone alongside it? If so, what was the dosage, and did they taper it gradually?

Furthermore, I've been advised to drink plenty of water. I'm curious to know how much water you were recommended to consume to help flush the drug out of your system.

Thank you in advance for any insights and personal experiences you can share.